Category: Medical

Let’s be real — coordinating your child’s medical care and supports can feel like a full-time job. First steps, birthdays, graduations… and then suddenly you’re enrolling in Medi-Cal waivers, trying to find new doctors for your young adult, and wait — why can’t I see my child’s medical info anymore?! And let’s not forget the …

Have you ever tried to explain your child’s needs to a school team or doctor, only to realize they’ve never even heard of the disability? Or maybe you’re still figuring it out yourself — learning terms like “low incidence,” “CVI,” or “O&M,” and wondering how all of it fits into your child’s IEP? If that …

We all got the crash course in genetics 101 in high school biology, but the role genetics plays in the lives of our kids is far more complex. You might be asking yourself questions like: What role does genetics play in my child’s development? Are all genetic conditions hereditary? Will genetic testing and counseling help …

Navigating an extended hospital stay for your child, and figuring out what to do when you finally get home, can be incredibly tough for anyone. And when your child is medically complex, it can add a whole new layer of stress and uncertainty — especially when you’re trying to process a new diagnosis, navigate hospital …

It’s true, navigating the world of acquiring durable medical equipment (DME) can be a lengthy, overwhelming, and sometimes maddening process. But first — what’s DME and why does it matter? DME includes medical supports and devices that can withstand repeated uses over time, like wheelchairs, communication devices, orthotics, and more. It can make a world …